We are scheduled to go back to Penn early July for a blast of chemo to make room in Chris's marrow for the t-cells to take root when they are introduced mid-month. Then, we are to stay in Philly for 6-8 weeks as the killers go to work, likely making Chris sick with "flu like" symptoms of fever, aches, chills, etc. They tell us that some time in the ICU is not unusual.
Until then, we are home, on a now familiar schedule of labs and transfusions, with vigilance for infection or other untoward developments.
Olivia and her husband have revised their usual summer plans so that they can be back in Philly for the treatments. We are hugely grateful for their help, support, guidance, shelter, transportation, wisdom, company, love, and lots more (the list is genuinely endless). Lily will also be close-by, coming in, and letting Chris have the full presence of his daughters.
Alex will stay with good friends who have had him twice already and who delightfully admitted that he is not much noticed in their household, meaning that he fits in smoothly, not messing with their rhythm. Keeping our kid for so many weeks is something for which I am not yet able to express my gratitude fully. How do I say thank you to for giving us a sense that he is safe and watched-over? That is a gigantic gift.
I hope that my wonderful friends never have the shitstorm of need that we are in right now. I want them to have much smaller needs, not because I am unwilling to do big things for them, but because I want them to not have this kind of need. However, if they do, I will be there, with all the patience and gusto they have given us.
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