Thursday, June 26, 2014

Perhaps I misunderstood

It is 10:42 pm and the oncologist has not called.  Maybe I misunderstood his last email about talking with us tonight.  He did say Thursday or Friday evening. But I replied that Thursday is best.  I don't know.

Maybe his plane is grounded somewhere (he said he would be traveling) or maybe some other eventuality interfered with calling.

Chris and I do know that Penn is not likely to happen anymore.  The signs of aspergilliosis are convincing (it is a definite rule-out for the trial) and Chris says that he doesn't think he can withstand the treatment of the trial.

We have already talked about these being the last months of his life.  Chris is resolved and quite sober about this happening.  He is tired of being sick and tired of transfusions.

Chris got two units of red blood today, which is unusual since they usually just give one at a time.  The difference in his energy and alertness was dramatic.  He went from seeming desperately ill this morning to engaged and almost perky this afternoon.  Going from one extreme to a relative other is hard to absorb.  It is like saying hello and goodbye, over and over.

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